Dear all Members,
As some of you are aware my wife suffers from many medical conditions, one of which is a Connective tissue disorder called Ehlers Danlos Syndrome, this can also affect the gastro system (Gastroparesis) .
EDS causes problems with her swallowing (Dyspagia), gastro, eating and not to mention her joints dislocating on a daily basis.
If anyone would like to read more about EDS and an explanation then theres a good link to info here:
https://www.ehlers-danlos.com/
Since 2012 she has been unable to walk and is now confined to an electric wheelchair, as she currently needs surgery on her neck due to the instability (Cranio Cervical Instability) again the Health Insurance will not pay for this as the only Doctors that fully understand this condition are either in Spain or America and the surgery costs around 150,000 euros!
Due to her complex illnesses and allergies (MCAD) she is also unable to take the standard medications, so she was offered by the Doctors here an alternative.
Unfortunately the medication is not covered anymore by the Dutch Health Insurance despite the fact that the Dutch government make the medication and export it to the world. My wife took the Insurance company to court last year and unfortunately lost against the big boys, which is not surprising as they are the 2nd largest insurance company in Europe. The insurance also offered my wife Euthanasia three times rather than paying for her medication costs, she's only 41 years old!!!
Since loosing in Court we have had to find the funds each month to pay for my wife's medication at a cost of approx 1500 euros as without this medication my wife will starve to death.
Since last Thursday the Insurance company has now decided cut off our entire income source as they have refused to renew my wife's Home Care package as another way of retaliating due to taking them to court!!!
As you can imagine this has caused a huge impact on our family as we now have no means of income to sustain paying my wife's medical costs as well as living costs!
If anyone can donate at all, I would be most grateful!
https://www.paypal.com/pools/c/8BO0...gN7xOj-vhRKF1wfdL31LbzUMjl7lBkRekVRf_BxpI0B38
As some of you are aware my wife suffers from many medical conditions, one of which is a Connective tissue disorder called Ehlers Danlos Syndrome, this can also affect the gastro system (Gastroparesis) .
EDS causes problems with her swallowing (Dyspagia), gastro, eating and not to mention her joints dislocating on a daily basis.
If anyone would like to read more about EDS and an explanation then theres a good link to info here:
https://www.ehlers-danlos.com/
Since 2012 she has been unable to walk and is now confined to an electric wheelchair, as she currently needs surgery on her neck due to the instability (Cranio Cervical Instability) again the Health Insurance will not pay for this as the only Doctors that fully understand this condition are either in Spain or America and the surgery costs around 150,000 euros!
Due to her complex illnesses and allergies (MCAD) she is also unable to take the standard medications, so she was offered by the Doctors here an alternative.
Unfortunately the medication is not covered anymore by the Dutch Health Insurance despite the fact that the Dutch government make the medication and export it to the world. My wife took the Insurance company to court last year and unfortunately lost against the big boys, which is not surprising as they are the 2nd largest insurance company in Europe. The insurance also offered my wife Euthanasia three times rather than paying for her medication costs, she's only 41 years old!!!
Since loosing in Court we have had to find the funds each month to pay for my wife's medication at a cost of approx 1500 euros as without this medication my wife will starve to death.
Since last Thursday the Insurance company has now decided cut off our entire income source as they have refused to renew my wife's Home Care package as another way of retaliating due to taking them to court!!!
As you can imagine this has caused a huge impact on our family as we now have no means of income to sustain paying my wife's medical costs as well as living costs!
If anyone can donate at all, I would be most grateful!
https://www.paypal.com/pools/c/8BO0...gN7xOj-vhRKF1wfdL31LbzUMjl7lBkRekVRf_BxpI0B38